About two years ago I posted the first picture of me without my hair online. Since then I haven’t really chosen to talk about it all that much anymore. From time to time, I’m really ashamed and I always wish that I wasn’t this way.. but what I’ve learned from all of that is that it’s not helping me any. No matter how much I try to hide who I really am, I’m not changing the fact that this is really me.
I have Alopeica Totalis, an unknown, incurable, untreatable disease/condition that has caused all of my head hair to fall out. I also have mild Alopeica Universalis, which is where all of my body hair (and eyebrows) fall out as well. I was diagnosed August 2010, and I have been battling with this everyday since.
Each day is difficult for me but I’m learning to not be so ashamed of it. Through all of this, I have learned to not judge people so much. I have discovered who I really need in my life, and who isn’t all that important. And I have also been able to meet dozens of amazing people who have exactly what I have, some in which have helped me and others I have helped too.
Although there isn’t a day I wouldn’t want my hair back, and I don’t think I will ever understand why this had to happen to me.. I have learned to accept the fact that I have made an impact on a lot of people lives just by sharing with them what I go through, and encouraging people to keep going in hard times. And with that said, I wouldn’t trade any of that for the world.
So yes, I am Emily, I am 17 years old and I have no hair.

About two years ago I posted the first picture of me without my hair online. Since then I haven’t really chosen to talk about it all that much anymore. From time to time, I’m really ashamed and I always wish that I wasn’t this way.. but what I’ve learned from all of that is that it’s not helping me any. No matter how much I try to hide who I really am, I’m not changing the fact that this is really me.

I have Alopeica Totalis, an unknown, incurable, untreatable disease/condition that has caused all of my head hair to fall out. I also have mild Alopeica Universalis, which is where all of my body hair (and eyebrows) fall out as well. I was diagnosed August 2010, and I have been battling with this everyday since.

Each day is difficult for me but I’m learning to not be so ashamed of it. Through all of this, I have learned to not judge people so much. I have discovered who I really need in my life, and who isn’t all that important. And I have also been able to meet dozens of amazing people who have exactly what I have, some in which have helped me and others I have helped too.

Although there isn’t a day I wouldn’t want my hair back, and I don’t think I will ever understand why this had to happen to me.. I have learned to accept the fact that I have made an impact on a lot of people lives just by sharing with them what I go through, and encouraging people to keep going in hard times. And with that said, I wouldn’t trade any of that for the world.

So yes, I am Emily, I am 17 years old and I have no hair.

posted 8:53 pm on Friday, January 24, 2014 with 221 notes
tags ยป #this stuff
#alopecia
#Alopecia Totalis
#alopecia areata
#bald
#hair
#make up
#beautiful
#hope
#advice
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  6. daft-wonders reblogged this from chronicchristianity and added:
    You go Emily. I’m sure not having hair sucks, but you pull it off damn well. I volunteered at my church for vacation...
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    You’re freakin’ beautiful!
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  6. daft-wonders reblogged this from chronicchristianity and added:
    You go Emily. I’m sure not having hair sucks, but you pull it off damn well. I volunteered at my church for vacation...
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    You’re freakin’ beautiful!
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